Together We Are Stronger ®


​Carion Fenn is the Founder & President of the Carion Fenn Foundation & the Carion Fenn Network. She is the architect behind Rare Disease Support Group Meetings, in partnership with Ajax Public Library and the Rare Disease Expo supported by the Town of Ajax. Carion is an award winning advocate for Syringomyelia, Chiari Malformation & Rare Diseases receiving the Spinal Cord Injury Ontario (SCI-ON) & University Health Network (UHN) Patti Dawson Award, Ajax Civic Award from Town of Ajax (the Town's highest honour), Advocacy Award from Abilities Awards 2014 and the Accessibility Community Award from the Town of Ajax. She is also an Interior Decorator/ Designer, currently serving her 2nd term on the Town of Ajax Accessibility Advisory Committee and a Rotary Club of Pickering Member. Carion has earned considerable recognition with media appearances on CITY TV, CHTV, TV ONE, ROGERS 10, CFRB1010, and Flow 93.5 FM. Carion has also appeared as a feature designer in magazines to include: New Dream Homes & Condominium, Loulou Magazine, Sway Magazine, Amoi Magazine, and her work appeared in ads for Adicolor in Home and Décor Magazine.