Together We Are Stronger®



  • Founder, Carion Fenn Foundation. 
  • Founder, Carion Fenn Network (worldwide)
  • Creator & Founder, 1st Annual Rare Disease Expo Supported by Town of Ajax.
  • Creator & Founder, Rare Disease Support Group Meeting in Partnershp with Ajax Public Library. 
  • Member, Town of Ajax Accessibility Advisory Committee. 
  • Member, Rotary Club of Pickering. 
  • Known across Canada as an Inclusiveness & Accessible Advocate.
  • Recipient of the Ajax Civic Award & Accessibility Community Award.
  • Recipient of the Spinal Cord Injury (Ontario) & University Health Network Patti Dawson Award. 
  • Recipient of the Abilities Award, Advocacy Award. 
  • Member of the Town of Ajax Accessibility Advisory Committee.
  • Responsibile for over 20 Town and City Proclamations of Syringomyelia, Chiari Malformation and Rare Diseases. 
  • Author of a Current Petition for a Canada Wide Proclamation Currently Under Parliamentary Review. 
  • Operator of a Successful Ontario Wide Design Business.